Managing multiple sclerosis starts with information

Knowledge is power. Nowhere is this truer than in the context of a chronic and unpredictable illness such as multiple sclerosis. To assist people in finding the information they need, the Multiple Sclerosis Society of Canada offers information in a variety of formats: newsletters, booklets, its website, and information and referral services.

While the MS Society has always prided itself on providing up-to-date, accurate information on numerous topics, the results of a Canada-wide survey in 2004 brought home how valuable information is to people affected by MS – this includes people who have MS, their families and caregivers. Of the approximately 11,000 survey respondents, 65 percent said they use the MS Society publications and consider them to be one of the most important services offered by the Society for their quality of life.

Survey respondents also took time to comment and offer suggestions. A survey respondent in Atlantic Canada wrote: “I really enjoy [the] magazine that I receive. It keeps me up-to-date on new research and results and also tells stories of real individuals who share their personal experiences, which I can relate to and feel that it’s not just me who is affected.”

From Manitoba, a respondent wrote: “I am very appreciative of all the comprehensive and varied supports that are available: the newsletters, booklets, articles, pamphlets…”

And from British Columbia: “Although one family member may be diagnosed with MS, the entire family has to learn to live with MS.”

The MS Society took this feedback and looked at ways that it could enhance programs from coast to coast, including its information services. “While we received high marks for information provision, it was also clear we should do more outreach, revise and improve some of the publications, and add some new topics that would directly benefit people with MS, family members and caregivers,” said Nicole Mellin, Interim Vice-President, Client Services, MS Society of Canada.

The MS Society offers 25-plus booklets, available in both English and French. Written in a straightforward yet supportive tone, they provide information so readers can learn the facts they need to know about their or their loved one’s illness, make practical decisions and find coping strategies that work for them.

Publications cover general information, managing MS symptoms, health and wellness, MS and family, managing practical issues, MS and caregivers, and young persons with MS.

The following are just a few of the publications available through the MS Society of Canada. Publications are free of charge (unless the order is bulk), and can be obtained by calling a local MS Society chapter or by contacting an MS Society division office at 1-800-268-7582. They are also available online in PDF format at www.mssociety.ca.

General information
MS: Its effects on you and those you love
A comprehensive handbook for those new to MS, this publication addresses some of the most frequently asked questions about diagnosis, symptoms, treatments, research, coping strategies, and sources of support.

Managing MS symptoms
Urinary Dysfunction and MS: A guide for people with Multiple Sclerosis
This publication is a comprehensive guide to MS-related urinary problems.

Health and wellness
Everybody Stretch
This illustrated workbook provides 34 stretching exercises for the entire body, with variations for different levels of ability, and an exercise log and worksheet.

Multiple sclerosis and family
How to Talk about MS with Your Children
This guide is a practical aid to help parents communicate better with their children about multiple sclerosis.

Managing practical issues
Employment and Income Supports
This comprehensive publication helps individuals with employment, income support and other financial concerns.

MS and caregivers
A Guide for Caregivers
This guide provides information on practical issues faced by caregivers. A resource list is included.

Young persons with MS
Mighty Special Kids
An activity book for kids aged 5 to 12 who have multiple sclerosis. The book helps families talk about MS and helps children understand MS.